Right to Health Care of The People Suffering From Rare Diseases – Case Study of Serbia Legislation

Stojković-Zlatanović, Sanja and Sovilj, Ranko and Sjeničić, Marta (2018) Right to Health Care of The People Suffering From Rare Diseases – Case Study of Serbia Legislation. In: Security, political and legal challenges of the modern world : conference proceedings. Vol. 1. University "St. Kliment Ohridski", Bitola, pp. 202-211. ISBN 978-9989-870-79-8

Text SStojkovic_RSovilj_MSjenicic_Right_to_Health_Care.pdf - Published Version Available under License Creative Commons Attribution Non-commercial No Derivatives. Download (1MB)

Abstract

People with rare diseases are facing with numerous challenges in exercising right to health care. Access to health care system is often limited taking into account that there is still lacking the classification and codification of the rarest diseases. The revision version of the International Classification of Diseases of the World Health Organization (ICD-11) is scheduled to be realized in 2018 and is expected to include the category of rare diseases as well. Serbia amended Health Care Law establishing the centers for rare diseases and adopted the new Prevention and diagnosis of genetic diseases, genetic conditioned anomaly and rare diseases Law (2015). This paper aims to provide analysis of the medico-legal status of patients with rare diseases in Serbia considering the European Union legislation and recent trends in international policy and law in this field.

Actions (login required)

View Item